Program Components : Florida Puerto Rico Stroke Registry

Florida Puerto Rico Stroke Registry

Disparities in acute stroke care have been documented and can contribute to inequality in outcomes after stroke between different race and ethnic groups, as well as between rural and urban populations.

Recognition of disparities is often the first step in creating programs to address them. Only a few states have state stroke registries to characterize and improve the care of stroke either supported by the Centers for Disease Control through the Paul Coverdell program or by local initiatives.

In partnership with the American Heart Association’s Get with the Guidelines-Stroke quality improvement (QI) initiative, the Florida Puerto Rico Stroke Registry aims to:

  • Create the first phase of a voluntary Florida-Puerto Rico Stroke Registry with the goal of leveraging the power of data already collected throw the AHA’s GWTG stroke database to identify and address disparities in stroke care.
  • Evaluate disparities in stroke care performance metrics by race, ethnicity, and geographic regions.
    Analyze the frequency of disparities at 30-days after a stroke in terms of outcomes (mortality, hospital readmission, stroke recurrence) medication adherence, and lifestyle modifications by race, ethnicity and geographic regions.
  • Evaluate the frequency of disparities in longer-term outcomes (mortality, hospital readmission, stroke recurrence) among Medicare patients within the Florida Puerto Rico Stroke Registry and the relationship of such outcomes with acute stroke performance metrics.
  • Implement education programs among healthcare stakeholders with a focus on identifying and implementing specific culturally-tailored quality improvement programs to address disparities.

For more information regarding FL-PR Stroke Registry participation please visit our Frequently Asked Questions page or Contact Maria A. Ciliberti-Vargas, MPH – Project Manager for the FL-PR Stroke Registry: (305)-243-2658 or Mciliberti@med.miami.edu

Please click on the following links to download a copies of the FL-PR Stroke Registry Invitation Letter and the Participating Hospital Agreement which will begin formal participation in the Registry.